Showing posts with label Multiple Sclerosis. Show all posts
Showing posts with label Multiple Sclerosis. Show all posts

Tuesday 31 December 2019

Nearly the New Year. Two hours left of this decade

I turned 64 This past October so I have seen a few New Years celebrations! It makes me no sort of expert just a senior experiences person! I have done okie kokies blocking the A2 in Ospringe as the customers of three pubs poured out of the bars  banging tin trays and spilling the contents of glasses as they put the left leg in!! One year me and a mate went to Trafalgar square and got into the fountains but we had planned ahead and had dry clothes in the car!  So we managed to get in a few clubs before returning home to Faversham.
since I have been married for over forty years most of my New Year Celebrations have been at home!
Our normal New Year eve would involve a Chinese take away. Tonight was no exception other than it was home cooked. The local takeaway closes Tuesdays. So off to Asda for Chinese cook at home! Sweet n sour chicken boiled rice and a beef curry plus duck wraps with plumb sauce!! 👍I am in bed it's now 10:30pm and some crappy film about pregnant women in New York is on. I am so engrossed I decided to write this post wishing all of my readers a very happy and prosperous 2020 and may you all have good health. I hope I can start blogging about my Multiple Sclerosis and the ongoing colostomy saga! Will I get my op this new decade? See you in the new year just 78 minutes away!😁

Friday 16 August 2019

Multiple Sclerosis bites back

There is no cure for Multiple Sclerosis  no medication to stop it's relentless journey! I suffer from primary progressive multiple sclerosis and laugh when people say "MS, so you get good days and bad days" I just agree with them. How can I tell them that the common perception is wrong, they are talking about another 'strain' of the disease, relapsing and remitting ms. Where you get stable periods days weeks months even years and then the MS is triggered into action for a period of time and then relapses leaving your body a little worse than before the attack! My primary progressive MS just keeps on its progressive March onwards messing my body little by little day by Day! Today was another very bad day! I tell people who will listen I have bad days and even worse bad days!
No prizes for guessing which today was. I woke at 6:02 now I am bed bound, I have to be hoisted out of bed by my wife! Last night was a bad night so she was exhausted and I didn't shout her to get me up. She woke at 7:45 made me a cup of tea and I woke again when it was stone cold. She had been creeping about trying not to wake me. She asked did I want another cup to replace the cold one I said no thanks and drank cold tea with my medication. Painkillers antidepressants and the like. As I said nothing to stop the relentless march  of the MS. The can alleviate some of the side effects but no it's progress!
I re-awoke at just after 1:00 shouted down to Heather who made me not tea that l drank slowly and she finally hoisted me outta bed just after two! I go into the bathroom on a shower stroke commode chair. I used the commode with the help of an enema that Heather administer's  daily. My bowels no longer work, I am awaiting an operation to fit a colostomy bag. When it's fitted I will be a two bag person on bag for poo one bag for pee! Strange I can remember when I aspired to be a two car family. Two bag human doesn't quiet hold the same allure!
By the time I had done the pooing and had a shave and a shower I was exhausted! I joke with my kids I have had a sss day today Sh1t shave and shower. I only shower every other day so ss or sss day. Work the ss  days yourself remembering I shave every day.

  • I finally got downstairs (we have a through floor lift) just after four. I can't walk anymore or stand so am hoisted out of the commode chair back into the bed, dressed hoisted outta bed into the wheelchair! So finally downstairs I eat my lunch at about four thirty. Lunch was served with painkillers! Painkillers are a problem! More painkillers have side effects even stronger painkillers to stop  me taking so many painkillers have even greater side effects. Feeling relatively pain free is a balancing act. The pain free bit is an illusion the medication is not strong enough but the side effects of even stronger ones are just too bad. It's a balancing act one I don't always get right!

This might sound as if I'm moaning, I am not Heather and I have never laughed so much. If we didn't laugh we would cry and self pitty ain't out style. I wrote this so people can read what it is like to have good days and bad days! Today was a good day!