Multiple Sclerosis bites back

There is no cure for Multiple Sclerosis  no medication to stop it's relentless journey! I suffer from primary progressive multiple sclerosis and laugh when people say "MS, so you get good days and bad days" I just agree with them. How can I tell them that the common perception is wrong, they are talking about another 'strain' of the disease, relapsing and remitting ms. Where you get stable periods days weeks months even years and then the MS is triggered into action for a period of time and then relapses leaving your body a little worse than before the attack! My primary progressive MS just keeps on its progressive March onwards messing my body little by little day by Day! Today was another very bad day! I tell people who will listen I have bad days and even worse bad days!
No prizes for guessing which today was. I woke at 6:02 now I am bed bound, I have to be hoisted out of bed by my wife! Last night was a bad night so she was exhausted and I didn't shout her to get me up. She woke at 7:45 made me a cup of tea and I woke again when it was stone cold. She had been creeping about trying not to wake me. She asked did I want another cup to replace the cold one I said no thanks and drank cold tea with my medication. Painkillers antidepressants and the like. As I said nothing to stop the relentless march  of the MS. The can alleviate some of the side effects but no it's progress!
I re-awoke at just after 1:00 shouted down to Heather who made me not tea that l drank slowly and she finally hoisted me outta bed just after two! I go into the bathroom on a shower stroke commode chair. I used the commode with the help of an enema that Heather administer's  daily. My bowels no longer work, I am awaiting an operation to fit a colostomy bag. When it's fitted I will be a two bag person on bag for poo one bag for pee! Strange I can remember when I aspired to be a two car family. Two bag human doesn't quiet hold the same allure!
By the time I had done the pooing and had a shave and a shower I was exhausted! I joke with my kids I have had a sss day today Sh1t shave and shower. I only shower every other day so ss or sss day. Work the ss  days yourself remembering I shave every day.

• I finally got downstairs (we have a through floor lift) just after four. I can't walk anymore or stand so am hoisted out of the commode chair back into the bed, dressed hoisted outta bed into the wheelchair! So finally downstairs I eat my lunch at about four thirty. Lunch was served with painkillers! Painkillers are a problem! More painkillers have side effects even stronger painkillers to stop  me taking so many painkillers have even greater side effects. Feeling relatively pain free is a balancing act. The pain free bit is an illusion the medication is not strong enough but the side effects of even stronger ones are just too bad. It's a balancing act one I don't always get right!

This might sound as if I'm moaning, I am not Heather and I have never laughed so much. If we didn't laugh we would cry and self pitty ain't out style. I wrote this so people can read what it is like to have good days and bad days! Today was a good day!