Sunday 18 August 2019

Margate Caves officially re-opening this week!

Promote Thanet likes to promote local events and none is more local than the grand re-opening of Margate Caves! Those who know if me will be well aware I love Twitter and yesterday I read this tweet:- Drumroll!! The news you have all been waiting patiently for...Margate Caves will officially re-open this Thursday, 22nd August. There’s still work to do, but we're eager to start welcoming you through the doors and down the stairs. Details on the website
If you have a Twitter account tweet about @MargateCaves let's all get on board and get #MargateCaves trending and have a look at their Twitter account Margate Caves @MargateCaves
I don't do Facebook but check @MargateCaves
For their Facebook details!

Saturday 17 August 2019

Listening to Alanis Morissette you learn on Apple Music

When I was around 19 I had ambition to be in a band! That was 1974 and punk was the music to listen to but  I was strictly rock n roll😯  now I am 45 years older and sitting here listening to the 'Jagged little Pill' album and wondering where the years have gone! The drummer and lead guitarist are both dead I ain't seen the bassist in 43 years and my piano was sold to pay my mortgage years and years ago!
Do I have any regrets ? If I do I would never admit them to anyone! But in truth no I don't. I am going on 64 years old and I miss my youth but I don't regret anything! Regrets are for wimps! They won't change the past just ruin my future! I phoned my oldest mate earlier  and he lives in a caravan and is recovering from a stroke and no he has no regrets! You can't change the past but you can change your future! Don't dwell on what has gone before but future in tomorrow! One thing I am going to change Alanis Morrisette  it's got to Ironic and I dont need anymore good advice !!!😁 night folks

Friday 16 August 2019

Multiple Sclerosis bites back

There is no cure for Multiple Sclerosis  no medication to stop it's relentless journey! I suffer from primary progressive multiple sclerosis and laugh when people say "MS, so you get good days and bad days" I just agree with them. How can I tell them that the common perception is wrong, they are talking about another 'strain' of the disease, relapsing and remitting ms. Where you get stable periods days weeks months even years and then the MS is triggered into action for a period of time and then relapses leaving your body a little worse than before the attack! My primary progressive MS just keeps on its progressive March onwards messing my body little by little day by Day! Today was another very bad day! I tell people who will listen I have bad days and even worse bad days!
No prizes for guessing which today was. I woke at 6:02 now I am bed bound, I have to be hoisted out of bed by my wife! Last night was a bad night so she was exhausted and I didn't shout her to get me up. She woke at 7:45 made me a cup of tea and I woke again when it was stone cold. She had been creeping about trying not to wake me. She asked did I want another cup to replace the cold one I said no thanks and drank cold tea with my medication. Painkillers antidepressants and the like. As I said nothing to stop the relentless march  of the MS. The can alleviate some of the side effects but no it's progress!
I re-awoke at just after 1:00 shouted down to Heather who made me not tea that l drank slowly and she finally hoisted me outta bed just after two! I go into the bathroom on a shower stroke commode chair. I used the commode with the help of an enema that Heather administer's  daily. My bowels no longer work, I am awaiting an operation to fit a colostomy bag. When it's fitted I will be a two bag person on bag for poo one bag for pee! Strange I can remember when I aspired to be a two car family. Two bag human doesn't quiet hold the same allure!
By the time I had done the pooing and had a shave and a shower I was exhausted! I joke with my kids I have had a sss day today Sh1t shave and shower. I only shower every other day so ss or sss day. Work the ss  days yourself remembering I shave every day.

  • I finally got downstairs (we have a through floor lift) just after four. I can't walk anymore or stand so am hoisted out of the commode chair back into the bed, dressed hoisted outta bed into the wheelchair! So finally downstairs I eat my lunch at about four thirty. Lunch was served with painkillers! Painkillers are a problem! More painkillers have side effects even stronger painkillers to stop  me taking so many painkillers have even greater side effects. Feeling relatively pain free is a balancing act. The pain free bit is an illusion the medication is not strong enough but the side effects of even stronger ones are just too bad. It's a balancing act one I don't always get right!

This might sound as if I'm moaning, I am not Heather and I have never laughed so much. If we didn't laugh we would cry and self pitty ain't out style. I wrote this so people can read what it is like to have good days and bad days! Today was a good day!

Thursday 15 August 2019

Trip to the seaside at Margate

For various reasons I have not left the house for some time, but this evening I had a trip to Barnes car park at Westbrook. The trip out involved the purchase of Kentucky Fried Chicken from Margate high street. And then along the seafront to Westbrook. I have been in respite care for a month and found myself surprised at the number of people enjoying the seafront even at seven oclock. What else surprised me was the constant stream of cars pouring into Margate! I have been away from Thanet for most of the summer and had forgotten how many visitors actually come to enjoy themselves here.